» Blog Archive » Resources for Special-Needs Children

There have been a lot of comments and questions from parents of special needs children recently.

Honestly, as RaisingSmallSouls is a personal website that I have developed about a subject I am passionate about- raising emotionally healthy children- I am not qualified to begin to answer some of the questions regarding special needs children.

Many parents have brought up autism, ADD, ADHD, Asperger’s Syndrome, to name a few.

Please help us guide parents by posting links to websites or support forums that have helped you!

Post the link, a description, and what YOU have found to be helpful on that site!

Thanks!

This entry was posted on Thursday, June 15th, 2006 at 11:41 am and is filed under Parenting Advice. You can follow any responses to this entry through the comments RSS 2.0 feed. You can leave a response, or trackback from your own site.

216 Responses to “Resources for Special-Needs Children”

Patti Hendrickson says:

One site that is helpful for parents w/ children w/ learning disabilities and other problems is
www.schwablearning.org

It has different options for parents and children in coping w/ the problems each face.

Hope this might help!

June 18th, 2006 at 9:35 am

Melissa says:

I found this site on Aspergers to be helpful.
Asperger Resources

June 18th, 2006 at 10:22 am

Maryann Lombardi says:

As the mother of a child with profound autism I have found great solace and understanding as well as wonderful resources through autismspeaks. Suzanne and Bob Wright the founders have a grandson with autism and they have really taken up the mantel of advocacy to see that resources are brought up to speed in finding a cure as well as help for all the families that need it.

June 18th, 2006 at 11:12 am

Rahimah says:

Center for children with special health care needs

June 19th, 2006 at 2:28 am

SHERRY LEE says:

Scotopic Sensitivity Syndrome (SSS) or Irlen Syndrome (Light Sensitivity). This website has a self test for anyone who might have Irlen Syndrome. My son is 7 and has this - he now reads with an overlay. He went from a level D to H from March to May. His self esteem has improved and he is back to being a happy confident little boy.

June 19th, 2006 at 3:46 pm

Maya Charlton, MA, MT-BC says:

I am a board certified music therapist with extensive experience working with children with special needs, and would encourage parents or caregivers to look into music therapy as a highly effective and engaging therapeutic medium for addressing a wide range of needs. More information and local music therapists can be found at www.musictherapy.org

June 19th, 2006 at 4:54 pm

Jennica Nill says:

For parents of children with Autism that want to learn more about Applied Behavior Analysis:
http://www.elija.org/links.html
http://rsaffran.tripod.com/aba.html
http://www.elija.org/jennicasnotes.html
For Free e-learning courses about the history of the disabilities movement, self determination, and how to “make your case” working with policymakers:
http://www.partnersinpolicymaking.com/
To understand you and your child’s rights in special education for all disabilities:
http://www.wrightslaw.com/
For support, look into yahoo groups to find what fits your needs. I have found yahoo groups like the IEP Guide, Reed Martin special Ed. Law, ABAParents, and local yahoo groups offer support 24/7 from parents and professionals all around the world.
Just in general, it is very important to learn from many resources and try whenever possible going directly to the source. Sometimes, information gets watered down and may not be accurate (learned that the hard way,don’t underestimate your gut instincts!)
Keep in mind that your child is individual and unique, there is no one right way. If you listen and follow exactly what one person says they think you should do(including me :0) , you may be limiting your child’s success and dreams
and your happiness to someone else’s’ interpretations…
I personally found live support groups a bit depressing.
I like going to educational conferences from reputable individuals because
you learn that yes, this is challenging and that it’s hard at times, but this is WHAT you DO about it, plus,I like learning along side my sons teachers.
good luck,stay positive,learn the art of day by day, enjoy your family, be proud of how capable and strong you become, celebrate EVERY victory whether a small step or huge milestone.
Cheers,
Jennica

June 20th, 2006 at 5:45 am

Annie Dunn says:

As a mother of 5, the youngest requiring special needs, I have been on a mission to find all that I can for all types of syndromes. My daughter is still undiagnosed yet specialists feel they are getting closer.
I’d like to thank those that took the time to reply to this for it will help me in research. However, I am looking for so much more.
I am opening up a facility where I live, yet also I have a place online that is meant to help all of the children throughout the USA. We have a Refer a Child and a Child of the Month that we work hard to help those that need something by us parents sticking together and helping eachother. There are resources, a support group and more.
If you would like to visit, the site is www.briannasblessings.com
We are also trying hard to help with the costs of things to parents by having things reduced to almost wholesale costs. We still need to put things on there, so if there is something you need or want, just let us know!

June 20th, 2006 at 8:40 am

Lisa Rolins says:

As a mother who has had a child die from cancer the following were useful to me. angleonmyshould@yahoogroups.com and http://www.cancerindex.org/ccw/guide2n.htm for children and families dealing with Neuroblastoma cancer.

June 20th, 2006 at 1:47 pm

Inez says:

If you live in the New York City metropolitan area, Resources for Children with Special Needs, located in downtown Manhattan is an excellent resource and advocacy organization for parents.

June 22nd, 2006 at 8:19 pm

Inez says:

Visit www.resourcesnyc.org

June 22nd, 2006 at 8:21 pm

Lisa says:

Best site for info on Asperger’s Syndrome

June 23rd, 2006 at 4:51 pm

Deborah says:

http://www.schwablearning.org/ is a wonderful website for anyone who’s child has just been diagnosed and who has a million questions. If they don’t have just the answer you’re looking for, they can direct you to the site that does.

June 26th, 2006 at 10:50 pm

Jill says:

Schwablearning.org is a great site to start with if your child has been diagnosed with LD, ADHD or other disability and you want to know what to do. Wrightslaw.org is great for additional input regarding legal aspects and interfacing with schools to get services. I also recommend attending a Wrightslaw seminar in your area when you get a chance…made a big difference in my feelings of confidence in dealing with all of the things associated with learning disabilities.

June 27th, 2006 at 4:48 pm

Ellen C. Braun says:

Thank you all for your heartfelt contributions for this page.

I want to recommend this site: www.breakingtheviciouscycle.info for children (or adults) with Crohn’s disease, colitis, or other GI issues.

I was diagnosed with colitis 2 years ago, and the diet truly changed my health for the better. There are several support group recommendations on the site.

June 27th, 2006 at 10:10 pm

PearlforGod says:

NATHHAN’S GOAL and PURPOSE:
To encourage homeschooling families with special needs children, in ways that glorify the Lord Jesus Christ and to find Christian homes for children with special needs.

June 28th, 2006 at 8:54 am

Idahomeschool says:

Take a look at the information and links at this site:

http://specialchildren.about.com//

I’ve found many ideas that have helped here.

June 28th, 2006 at 9:57 am

Lori Brown says:

This is a terrific site for information about Fetal Alcohol Syndrome and has tons of links to sites about related problems.

June 29th, 2006 at 1:21 am

Winifred says:

This website offers a quarterly newspaper about special needs students and their education. It also lists any conference, vendors, etc., that specializes in software/hardware, additional information. This is a good place to start.

June 29th, 2006 at 10:09 am

Leah Stoltz says:

My son is also autistic. He has made massive strides in all areas. The word miracle is used by his therapists. It feels so good to be able to find the things he needs to grow. And to receive support when I need it. What I have found most useful on line is the yahoo groups. I’m on ANDI site, that is biomedical approach group. Single parents of autism for my own support. GFCF diet to learn about the gluten/casien free diet and recipes etc that kids will eat. Recovered kids is a forum for parents of kids who have “recovered”
HPN - for hyperlexic kids. Autism BC yahoo cause I live in British columbia and the RDI-Canada yahoo forum.
All of these have been useful to me at different times, I’m signed up to all and made a folder in my inbox they all go in to, then when I have time I can read and learn. Mostly they give me ideas I hadn’t thought of and then I can go and do the research on them and find if it is right for my family.
One more I belong to was started by my mother. It’s called Gracing and is a site for grandparents of autistic children who want to be a positive impact on their grandchildren. My mom and I share what we can with any family members who find their way there.

good luc

June 30th, 2006 at 5:27 pm

Beth Morrison says:

I am the list owner of “Bright Late Talking Children UK”

We are a small group and have 27 parent members mostly from the UK who have late talking children. My own son is 7 and had
little speech until he was 4 years old- he is very bright and although still not quite age-appropriate in his language, he’s really making great progress. Our group was formed in April 2005 and although it’s not for parents of autistic children who are happy with their diagnosis, we have many parents who have been told their child is autistic and have been
misdiagnosed.
Many of our children talk late but are very bright or have high IQ’s, some are very early readers-like my own son and have developed their language skills through being able to read.

If you’d like to join us, please click on the link

Kind regards
Beth Morrison

June 30th, 2006 at 8:05 pm

Beth Morrison says:

http://health.groups.yahoo.com/group/BrightLateTalkingChildrenUK

This is the link

Beth

June 30th, 2006 at 8:08 pm

Shirley says:

Anyone coming to Western Australia please view:

www.adapt.org.au

and

www.parentswantinghelp.com

Thank you

July 1st, 2006 at 8:05 pm

Melissa Gregory says:

http://www.helpforkidspeech.org/articles/index.cfm

This site was a big help to me.

July 2nd, 2006 at 1:19 pm

donna faucett says:

Jan Bedell, a neurodevleopmentalist, is the wonderful woman you want to talk to. She can help with any learning disability. Her motto is Say No To Labels and Yes to Learning. Please, Please look her up. My child was not “labled with anyhing, but I used some of her methods and now my child that couldn’t stay focused on the task at hand is now we get through chores, games and school with no problem.

July 2nd, 2006 at 6:44 pm

donna faucett says:

http://www.littlegiantsteps.org
Jan Bedell-Litte Giant Steps

July 2nd, 2006 at 6:50 pm

Liz says:

This website is not only a support group type website but also an educational website. There is an educational consultant that can answer any questions you have regarding IEP’s and 504’s. Starfish Advocacy Association (www.starfishadvocacy.org) is a wonderful place to go. It is for parents of children with neurobiological disorders such as ADHD, Autism, Early Onset Bipolar Disorder, and PDD just to name a few. This website truly has been my saving grace.

July 4th, 2006 at 3:32 am

Angi Blakley says:

This is a great website for parents with children with Septo optic dysplasia/Optic Nerve Hypoplasia. It is very informative of all issues these parents and children deal with and there is even a great group web site on it to talk with other famiies and adults with sod and onh. If you child has this a highly recommened it. I don’t know where we would be with out it. My son has SOD and we have gotten so much info from this site and all the families with have talked with.

July 4th, 2006 at 5:44 am

Angi Blakley says:

sorry hear is the web site for sod/onh www.focusfamilies.org

July 4th, 2006 at 5:49 am

Angi Blakley says:

sorry here is the web site for sod/onh www.focusfamilies.org

July 4th, 2006 at 5:50 am

Heidi says:

Our Autism Spectrum children are everyone of the same animals in the movie animal school. Our children are on the spectrum just the same way the “neurotypical” children are. We are raising small souls that in some ways are closer to the soul realm than the regular children. They’re stories, words, and accomplishments are significant when they are only to speak a word for the first time at age 5, or say “I love you for the first time at age 7, or say just say they see the angels. They are “Special” because they “know” more than we do–not because someone has deemed less than adequate.

See a website that has a perspective that shows the Connection between God and Autism
www.williamstillman.com
It will change the way you see autism-FOREVER.

Son-Rise Mom with boys age 5 and 6 previously diagnosed with ASD.

I HIGHLY recommend www.son-rise.org . A parent training center and a “place for miracles”

July 4th, 2006 at 5:47 pm

Albin Thorning says:

Wrong Planet is a web community designed for individuals (and parents of those) with Asperger’s Syndrome, Autism, ADHD, and other PDDs. We provide a forum, where members can communicate with each other, an article section, where members may read and submit essays or how-to guides about various subjects, and a chatroom for real-time communication with other Aspies. Asperger’s Syndrome, a pervasive development disorder, is a form of autism. People with Asperger’s Syndrome usually have normal or above normal IQs. It is described as an inability to understand how to interact socially.

July 5th, 2006 at 4:48 am

Albin Thorning says:

And here’s the URL:

http://www.wrongplanet.net

July 5th, 2006 at 4:50 am

Angel says:

I found this to be one very informative site!

www.autismspeaks.com

July 6th, 2006 at 5:57 am

Diana O Alvarez says:

Hi,

I am currently working on a web page with my sons journey. If you like you can send parents to the schafer report at www.subs@doitnow.com

www.autismspeaks.org Autism speaks

DANquestions@aol.com Defeat Autism Now

www.autism.com/ari Autism Reasearch Institute

www.TAAP.info The Autism Autoimmunity Project

These web sites are very informative and up to date ARI is the grandad of them all, headed by Dr. Rimland.

your readers can also look up the USAAA, they are having a conference in Utah in Aug. they are still taking registrations. Going to at least one of the Autism conference is highly recommended the info is priceless. UA Autism Asperger’s Association

I would love to have the opportunity to help give info to as many partents as I can. I do have a resource and support group in Madera.

Thanx

with blessings form the heart,

Diana

18551 El Paso Rd.

Madera, CA. 93638

(559) 662-0651

July 6th, 2006 at 7:27 am

Katherine says:

I stumbled on this website during one of my many hours of homeschool research. I found it very interesting and extremely helpful. In fact, I came across an article concerning Central Auditory Processing Disorder (CAPD). It fit my son’s symptoms! I took him to an Audiologist who ran a series of specific tests and confirmed the diagnosis, which meant he had been MISDIAGNOSED by the public school system while he was in public school. Things are so much better now! Homeschooling WORKS, especially for special needs children! My son is excelling in areas never before thought possible. He has a correct diagnosis and through therapy, makes gains on an almost daily basis.

Another website that has been extremely helpful is: http://www.ldonline.org

Best of luck to everyone!

July 6th, 2006 at 6:50 pm

Katherine says:

The first website I was referring to was: http://www.balametrics.com. For some reason, it didn’t appear in my post. Sorry.

July 6th, 2006 at 6:53 pm

Bonnie says:

This learning center has a free distribution list where ararticles of interest to special needs parents are sent.

July 7th, 2006 at 4:14 pm

Karen says:

I have a website devoted to homeschooling bipolar children. The website is www.therapeutichomeschooling.org. If you go to the website you will find a link to my Yahoo support group for parents homeschooling special needs children using Waldorf Education methods. I have an 11 year old daughter that is bipolar (we think) and have researched bipolar in childrend thoroughly. On the “resources” page of the website you can find many more links, books, and Yahoo groups for help and support. We just placed my daughter in a residential treatement center for children with attachment disorders (and they deal with bipolar, etc. also). We are very hopeful that she will recieve the help she needs. We will be working with them closely doing family therapy. I’ll miss homeschooling her and having her at home, but I look forward to the day she returns happy, joyful and no more fighting!!!

July 8th, 2006 at 10:52 am

JoJo Tabares says:

I have been homeschooling my two gifted children one of whom has Sensory Integration Dysfunction for six years. I have always had trouble gaining advice for how to deal with them from other homeschoolers because they just didn’t understand what was involved. My son also has ADD type symptoms making it very difficult to teach using traditional lecture or reading along techniques. I formed my own Yahoo group for Christan parents of shy, gifted, ADD or other learning disabled children. It is a place of support, fellowship, education and fun. It’s called Homeschooling with Humor and you don’t have to homeschool to join. We learn from each other and have various activities that draw out their communication skills which these children have trouble with.

July 8th, 2006 at 12:43 pm

Chris Murphy says:

I have an 11 yr old son w/bipolar disorder.
BP kids has been a Godsend, I don’t know what I would do without it. www.bpkids.org

I also found these other websites helpful and informative. Thank God there are places like this website and the ones that people are offering for us to go to. I say awareness is the key to life.

www.wrightslaw.com Special Education info
www.bpchildresearch.org Pediatric BiPolar info
www.alternativementalhealth.com Alternative methods to RX
www.thebipolarchild.com Authors of The BiPolar Child

God Bless!
Chris

July 8th, 2006 at 8:25 pm

Kristi says:

As a new member to this site, I’m so happy to see this new section of the website. I have 5 yr old twin boys, one has PDD and the other one doesn’t. It’s very interesting raising a “normal” (I hate that word, lol) child and a child on the spectrum. I will definately be back with alot of websites I found helpful!
Kristi

July 9th, 2006 at 11:21 am

JoJo Tabares says:

I run a Yahoo support group for Christian parents of shy, gifted, ADD or children with learning disablities. Homeschooling with Humor provides fellowship, fun activities, educational support and a little levity.

JoJo

July 9th, 2006 at 8:47 pm

MariBeth says:

I have personal experience with the below center. It is located in Arizona…our family has had much success and I have referred over a dozen families to them, and they have had success with everything ranging from Autism to ADD/ADHD to reading delays, food allergies etc. Check it out!

http://www.crossroadsinstitute.org/

July 11th, 2006 at 12:09 am

Aleta says:

I have a nine year old son with Sensory Intergration Dysfunction. All senses work well, but neurologically do not work together well. (Many kids with autism have this problem. Some kids are misdiagnosed ADD or ADHD.) He also has problems with his eyes “tracking” well together. Sensory therapy has brought him a long way, and we have hope that it will continue to do so.

July 11th, 2006 at 4:08 pm

Aleta says:

Website did not post on first try.
www.sensorylearning.com

July 11th, 2006 at 4:10 pm

Ronda says:

The DORE Program is a clinically proven drug-free permanent solution for AD/HD, dyslexia, behavioral and other learning difficulties.

July 11th, 2006 at 9:06 pm

Ronda says:

The DORE Program is a clinically proven drug-free permanent solution for AD/HD, dyslexia, behavioral and other learning difficulties. http://www.doreusa.com

July 11th, 2006 at 9:09 pm

Joyce says:

I have a teenaged son with Asperger’s who is doing very well. My local group’s website (www.pep-albny.org) has links to info about therapies that have helped my son.

July 12th, 2006 at 11:21 pm

Raelene says:

Minds of All Kinds by Mel Levine is an amazing book to help understand children of all kinds and helps to explain a wide variety of special needs!

Enjoy

July 13th, 2006 at 12:43 am

Mary says:

I can recommend www.rdiconnect.com for information for parents of children with autism of all ages. The Connections Center will put you in touch with an RDI certified consultant who can help the parents reach their child to give the child a boost in the quality of life issues these individuals face.

July 13th, 2006 at 11:39 pm

Barb says:

ADHD & LD Support - Support, advice and encouragement for ADHD and other learning disabilities, offered by experienced parents and adults.

July 14th, 2006 at 7:21 pm

Barb says:

Link for ADHD & LD Support

July 14th, 2006 at 7:23 pm

Barb says:

For some reason, the link isn’t taking.

[URL=http://barb1.proboards31.com/index.cgi][IMG]

http://barb1.proboards31.com/index.cgi

Hopefully one of these will work.

July 14th, 2006 at 7:24 pm

Leah M. says:

To: JoJo Tabares

Your link hasn’t been posting here for your Yahoo address.

I am very interested, as my 2 y.o. has just been diagnosed with Sensory Dysfunction and I am still learning about it.

July 14th, 2006 at 10:07 pm

JoJo Tabares says:

Sorry. It asked me for the link on top and it is linked to my name. I didn’t realize it wouldn’t post. Here you go:

http://groups.yahoo.com/group/HSwithHumor/

This is the blurb it refers to up above:

JoJo

July 14th, 2006 at 10:17 pm

Monika says:

This is a site that I developed to share with others who are interested in learning more about a relatively common but largely unheard of condition called Sensory Processing Disorder or Sensory Integration Dysfunction. This site contains a journal of how we got my son diagnosed, what therapies have worked well for us, definitions and descriptions of SPD, tips for teacherss and a huge list of my favourite sites related to this disorder.

July 24th, 2006 at 8:36 am

Monika says:

OK. Let’s try this again. Here is the link to my site about Sensory Processing Disorder or Sensory Integration Dysfunction: http://hypersensitivekids.blogspot.com

It didn’t appear on the last post!

Thanks

July 24th, 2006 at 8:38 am

Liane G says:

A great reading resource is Driven to Distraction. It was one of the best books I have read on ADD and ADHD. I have a 15 year old daughter who is doing well in school with ADD and a joy to be around. I think a lot of it is because we started therapy young (3 years old) and have held her accountable for her behaviors. I have to argue with teachers who want to say she could not have it as she is well behaved so they do not want to do anything to help her as they somehow beleive that I am making it up. She makes honor roll at least 1 time a year and is medication free since 3rd grade. It has been a learning experiance but I would not trade her for a genius child with no problems she is a gift and has made my life better and me a better person!

July 24th, 2006 at 9:51 am

Sandy says:

These sites help if your child suffers from the learning disability dyslexia.
www.dyslexia-teacher.com &
www.sensoryintegration.com

July 24th, 2006 at 2:12 pm

Shannon says:

Lots of great sites to access. There were a number I did not know about. Thank you all for sharing. We have a child on the autism spectrum. Here are a few sites no one has listed yet:

www.iidc.indiana.edu/irca
A great site that has tons of academic quality information.

www.do2learn.com
help to do visual supports to use at home

www.autism-society.org
Each state has it’s own autism society that usually has a lending library (free to members), membership is quite inexpensive. Also links to other sites.

www.nlm.nih.gov/medlineplus/autism.html
more academic style information and various links to other internet information.

The last is information on social stories. Carol Gray is the person who does a lot with them. She has a website that can be found by googling her name.

Lastly, the University of North Dakota has a completely on-line program for certification in Autistic Spectrum Disorders. It is graduate level programming, 12 credits, and being a parent/caregiver of a child on the spectrum qualifies someone regardless of educational degree.

Hope this helps!

Shannon

July 25th, 2006 at 8:26 am

marie says:

Liane G,
What sort of things did you do to help your daughter?My husband and I make sure to let our son know (especially when he tries to excuse his behavior on his illness) that he is responsible for his actions and that there are consequences both at school and at home.He is 14 yrs. old and was diagnosed with adhd at 4 yrs. old.Since being on ritalin, he has also been diagnosed with ocd & tourettes.He has a big issue with argueing.I was not allowed to argue with my mom when I was young and it gets me angry when he tries to argue with my husband and nyself.He also has problems with bullies at school.He is bullied most of the time,because he talks “smack” to most kids.We have talked about this with him it seems like a million times-to no avail.The summer is better,but when school starts again,I’ll be at my wits end after about the first month.Please,if you can give me some clue as to how to handle this behavior-which I heard was very common with adhd children- I would be so very appreciative and my son can have a good relationship with kids at school.

July 25th, 2006 at 10:24 am

Liane G says:

Dear Marie
I found a web site called Bullies to Buddies and it helped my daughter quite a bit. We have come to the conclusion that there is too much past history and some of the girls will never let anything die down so she has been encouraged to look for outside interests and friends. Self esteem really suffers for these children so I have tried to find as many things possible to give her positive feedback. Girls are somewhat differnt than boys as you have the jealously thing going and she is not quite to pick up unspoken social cues. Boys are pretty direct. Our daughter is very active in two differnt youth groups, running, basketball, chess, and drama. the physical outlets help her maintain more control and i try to encourage other adults to give her positive strokes also. Hope this helps.

July 25th, 2006 at 12:55 pm

Tina W. says:

Hi, I am a special education teacher and behavior consultant. I have been teaching in this field for almost 29 years and love it. I am very happy to see so many concerned parents. It has warmed my heart to know that parents are investing so much time and care in seeking out the best information possible for their child. Iam strongly convinced that all children can learn at their level if given the opportunity. I know this to be true because I have personally experienced it in working with my own students through out the years.

July 27th, 2006 at 12:49 am

Jim Hinson says:

Hello, I work in Vocational Rehabilitation and I would recommend you take a look at the following Web Sites.

NAMI is a great resource for parent with children who have disabilities.

www.nami.org is there website.

And

The Parent Information Center, here in New Hampshire is a great Web Site for parents that have children with disabilities.

http://www.parentinformationcenter.org/

My only other suggestion would be to contact a local support group. It has really helped my wife and I deal effectively with our child’s disability.

July 28th, 2006 at 11:09 am

Tonya Morrison says:

First of all, “Special Needs Children” need to be emotionally healthy just like other children…first and foremost they are human beings. They need the same attention, the same work, the same care…but a lot more of it…I have a 14 year old daughter with Down syndrome and I know…as a matter of fact, she’s my only child so raising a child with special needs is all I know. Your site is just fine for my daughter, since she is more “normal” than not…so - your site is just perfect as it is. I will, however offer this website for parents of children with Down syndrome who would like to take a look at it:

http://www.bgcdownsyndrome.org/links.cfm

You can find other links from there! Thank you for taking interest in “our children”!

July 30th, 2006 at 4:15 pm

Dee Dee says:

I am am mother of ten, with one special needs child. We have found that nutrition (especially in the form of glyconutrients and phytonutrients)play a much more significant role than most realize. MannaRelief provides nutrition to medically fragile children through the sponsorship of others. We went from not reading, to reading at a 1.5 level in about 3 months. I have friends with other special needs children who have also seen remarkable results. If you want to see the science that supports this you can go to www.glycoscience.org - start with the glyconutrient links. We are also in the process of developing a not-for-profit integrated recovery center which includes nutrition, hyperbaric, and other therapies along with medical support from an MD in the middle GA area. Feel free to call me at 478-394-0314 if you would like more information. There is also a research group that is partially funding a study on autism because of the reported results families are seeing. The sweetlanguageoflife website is my personal website that includes validation and testimonials. Another site for testimonials is www.glycoresource.com

Sharing Hope,

Dee Dee

August 1st, 2006 at 1:09 pm

Dee Dee says:

Okay, I am starting to get this The personal website address is www.sweetlanguageoflife.com

I also wanted to note that these nutrients have been shown to help with Tourettes and other disorders especially those that fall into the spectrum. Fisher’s Institute for Medical research has documented significant improvements in over 50 gene-mediated conditions.

I have several friends who have gotten their children off of medication after their children have been on these supplements, and there are at least 2 documented clinical trials that report the same results.

Dee Dee

August 1st, 2006 at 10:28 pm

Kathy says:

Lots of good info! Thank you! A few more sites that came to mind are:

socialthinking.com for children with issues developing social skills

amenclinics.com good for ADHD type issues

LD info for Canada ldac-taac.ca

For gifted kids:
hoagiesgifted.org
www.education.uiowa.edu

Gifted and LD
ericec.org
http://groups.yahoo.com/group/gifted_but_learning_disabled/

Have many more but will stop for now!

August 1st, 2006 at 11:22 pm

Christy Crider says:

TACA is a great website resource for any parent who has a child with Autism. I highly recommend this amazing website.

www.tacanow.org

August 6th, 2006 at 6:54 pm

Kassie Pearson says:

As a speech-language pathologist, I have found that the Cure Autism Now website provides great information on current research projects on autism, as well as, support for parents and fundraising projects. The ASHA website provides information on various disorders affecting speech, language, and hearing; also, various therapy techniques available and other helpful information.

August 7th, 2006 at 6:56 pm

Lee Laughlin says:

Hi,

For those interested in the genetic condition albinism, please visit the web site for NOAH, the National Organization for Albinism and Hypopigmentation. http://www.albinism.org

Take care,
Lee

August 8th, 2006 at 11:25 am

Tracy Wilson says:

This is a list serve for parents, teachers, or individuals with any form of autism. It has been an awesome resource.
Tracy

August 8th, 2006 at 7:55 pm

Lyra says:

Hi all here are some resourses for Learning Disabled, Gifted and Twice Exeptional children. Enjoy.

http://www.twicegifted.net/

http://www.ldonline.org/

August 9th, 2006 at 7:08 am

chris says:

If you search for groups on yahoo,they have excellent groups on autism,categorized by location,age,etc another one for autism is the delphi oasis forums:
http://www.udel.edu/bkirby/asperger/messageboards.html, here you will also find alot of diagnostic tools/studys/links

August 10th, 2006 at 1:42 pm

Lara Kowalsky says:

for children with ADD/ADHD: www.CHADD.org
parenting help/support for all challenging and “normal” children: www.parentmagic.com (this REALLY works)
http://specialchildren.about.com/library/blsupport.htm
for children with disorders on the Autism spectrum:
http://card-usf.fmhi.usf.edu (this site also has links to many other sites of interest for parents of children with disorders on the spectrum and “normal” children)
school support for behavior: http://www.pbis.org/english

August 12th, 2006 at 8:24 pm

Stacy says:

NICHCY stands for the National Dissemination Center for Children with Disabilities. We serve the nation as a central source of information on:

disabilities in infants, toddlers, children, and youth,
IDEA, which is the law authorizing special education,
No Child Left Behind (as it relates to children with disabilities), and
research-based information on effective educational practices.

Also, for information regarding Down syndrome specifically:
www.ndss.org
www.ndsccenter.org
www.downsed.org

August 13th, 2006 at 5:24 pm

Gail says:

NATHHAN National Challenged Homeschoolers Associated Network is a website that came highly recommended. They strive to equip “parents to raise their children with special needs or disabilities confidently.”

August 13th, 2006 at 11:00 pm

Muthu says:

I have a son diagnosed with PDD/Autism. I found the following sites very useful.
www.tacanow.com
www.danasview.net
www.gfcfdiet.com

August 14th, 2006 at 12:59 am

penny says:

Another option is to view the video FAT City by Rick Lavoie (or read any of his books!) FAt stands for Frustration Anxiety and Tension. It allows you to see what it feels like to try to learn with a learning disablity.

Should be required viewing for all teachers too!!

August 15th, 2006 at 12:43 am

Steve Waldstein says:

This is my website explaining homeopathy and giving many case histories of children helped who have been diagnosed as ADD/ADHD, autistic, learning disabled or who have a wide range of other problems. Treatment is available in Denver or long - distance and referral to good homeopaths throught North America.

August 15th, 2006 at 4:05 pm

Steve Waldstein says:

Oops the site is http://homeopath.at

August 15th, 2006 at 4:08 pm

Carol says:

This is an excellent site for Nonverbal Learning Disorders.

August 23rd, 2006 at 6:25 pm

Carol says:

www.nldline.com

August 23rd, 2006 at 6:28 pm

Debra says:

noted that someone had already listed, but wanted to reiterate just how helpful the site is…it is the site that I recommend to all early childhood educators. Also may want to make sure they know it is L D online, since the lower case l is hard to distinguish sometimes.
debra

August 24th, 2006 at 12:50 pm

Susan says:

Here’s a website that I have found to be extremely helpful as a mom and a public school teacher. I was also blessed to attend Susan Barton’s 6 day seminar on Diagnoising Dyslexia this summer.

August 27th, 2006 at 6:26 am

Susan says:

I’m sorry! Here’s the website:
http://www.dys-add.com/index.html

August 27th, 2006 at 6:29 am

Joyce Chicoine says:

My local group has its own web-site, with several useful links. It’s www.pep-albny.org.
–Joyce

August 29th, 2006 at 7:28 am

Dotty Scalco says:

The ECHO Foundation
Educating on Children’s Health Options.
Excellent website offering non medical treatment advice and lifestyle changes. Also has monthly support group meetings in the S. Florida area.

August 29th, 2006 at 11:09 am

Lisa says:

My nonverbal daughter with autism and motor challenges learned to fully communicate for the first time in her life using the Rapid Prompting Method featured on this website. Started by Soma Mukhopadhyay, it was brought over to the U.S. by the Cure Autism Now Foundation and proved to be extremely successful with all children and adults who have difficulties communicating. Many of the children are now completely included in school and lead fulfilling lives. I ENCOURAGE ALL OF YOU TO INVSTIGATE AND GIVE IT A TRY - IT COMPLETELY TURNED OUR LIVES AROUND!
Also check out our website: www.Aut2Communicate.com for our personal experience with this method & applicable products.

August 29th, 2006 at 2:48 pm

Lisa says:

ARGH: The website address didn’t show up. Please check out www.halo-soma.org for the HALO (Helping Autism through Learning and Outreach) organization that has brought communication and education back into the lives of countless children with communication challenges.

August 29th, 2006 at 2:50 pm

Donna says:

www.udel.edu/bkirby/asperger/ - OASIS Online Asperger Syndrome Information & Support

www.wrightslaw.com/
Parents, educators, advocates, and attorneys come to Wrightslaw for accurate, reliable information about special education law, education law, and advocacy for children with disabilities.Wrightslaw has thousands of articles, cases, and free resources about dozens of topics

August 31st, 2006 at 10:42 pm

Julie says:

Cerebral Palsy - my 3 yr old son has CP and I have found the KidPower group a great source for support and information:

http://groups.yahoo.com/group/KidPower/

It’s also where I found out about Raising Small Souls

September 7th, 2006 at 2:03 pm

Sherry says:

For ADD/ADHD I know that a lot of times nutrition can make a difference. If you want more information you can contact me at sherryduff@hotmail.com and I can put you in contact with people who have had really great results with some of these products.

September 12th, 2006 at 8:12 am

Mary B says:

Wrightslaw and its companion websites are great sources of information for parents. I found their Yellow Pages very helpful for local resources. The URL is www.wrightslaw.com. Their other website is a companion to their publication”From Emotions to Advocacy” which is a wonderful resource to help you become the best advocate you can be for your child. The url is: www.fetaweb.com.

Another great site for children with dyslexia is www.interdys.org, the site of the International Dyslexia Association. I would alo high recommend Schwab Learning at www.schwablearning.org and the Learning Disabilities Association website at www.ldanatl.org.

September 14th, 2006 at 11:34 am

patricia says:

This intervention has been critical to my son’s progress. It completely changed our lives once we started floortime.

September 20th, 2006 at 2:13 pm

patricia says:

This intervention has been critical to my son’s progress. It completely changed our lives once we started floortime.

September 20th, 2006 at 2:13 pm

Fred H Coats Jr says:

The Child and Adolescent Bipolar Foundation (CABF) is an excellent source of information for parents of bipolar children.

http://www.bpkids.org

September 24th, 2006 at 3:44 pm

Karen says:

I have benefitted from reading the following books, all of which have a list of resources in the back of the book. Most of the books I borrowed from my local public library.

Special Children, Challenged Parents by Robert A Naseef, PhD www.specialfamilies.com His son is autistic and mine is not, however I felt the book was quite helpful. Dr. Naseef is also a counselor & holds seminars periodically.

Thinking in Pictures by Temple Grandin, PhD www.grandin.com An interesting, insightful book written by a highly functionining, successful woman with autism.

A Special Kind of Love by Susan Titus Osborn and Janet Lynn Mitchell This is a compilation of stories from families…very moving and spiritually uplifting…and one I could only take in a little at a time because it really hits close to home.

A local website that provides links not only to local (NY state) sites, but also to national sites is rackercenters.org click on resources for the comprehensive list of links

And finally, thearc.org is a wonderful site for people with mental retardation and developmental disabilities and their families.

Hope these help.

September 26th, 2006 at 3:00 pm

tracee says:

for tourette’s syndrome/ocd/ad/hd (TS+)and other neurologic disorders I find help from www.tsa-usa.org and www.AFNIC.org

September 27th, 2006 at 12:10 am

Albina Sportelli says:

The Record, a newspaper in Bergen County, New Jersey, has published a terrific series of stories on Autism. Go to northjersey.com for the series of stories.

September 27th, 2006 at 12:53 pm

Sue Phelps says:

ldonline.org is a great general information website
IDA.org the International Dyslexia Association website is good.
Dr. Mel Levine’s All Kinds of Minds is a good site not sure of the address but you can Google it.

September 28th, 2006 at 2:35 pm

Tara Seager says:

This site and the women’s information below is extremely important for friends, family, class mates of children with Special Needs. Please go to www.sawoneheart.org.

lisa cronin miller
president

sensitivity awareness workshop of southwest florida, inc.

a 501(c) 3 florida nonprofit corporation
lisa@sawoneheart.org
8359 beacon blvd . suite 203 . fort myers . florida . 33907
239 . 466 . 6344 office
239 . 425 . 2601 fax
239 . 340 . 4555 mobile

September 29th, 2006 at 9:24 am

Terri Beck says:

Hi, I have worked with kids with special needs for 13 years as a Pediatric Occupational Therapist. One of the resources I highly recommend to families of children with sensory processing disorders is “Sensational Kids,” by Lucy Jane Miller. She is an Occupational Therapist and the leading researcher in this area. This book came out earlier this year and has been very helpful to many of my families. Check out her website at www.sensationalkids.org.

October 2nd, 2006 at 7:35 pm

Dixie says:

A very informative site for Parents and Educators on Autism.

October 5th, 2006 at 9:58 am

Dixie says:

Website listing for #105

http://www.iidc.indiana.edurca/fmain1.html/i

October 5th, 2006 at 10:02 am

Dixie says:

My apologies on website listing error. Again a great resource.

http://www.iidc.indiana.edu/irca/fmain1.html

October 5th, 2006 at 10:15 am

Denise LaMontagne says:

My nearly 4-year old daughter was diagnosed with AUTISM fifteen months ago. We have been extremely fortunate to have discovered floortime, a play-based therapy under the DIR model (Developmental Individual Relationship-based), and have designed her entire therapy program based on this model. It is all about social-emotional development and treating the underlying emotions that cause the symptoms, not the other way around. We see her making amazing progress every single day and primarily attribute it to DIR/floortime. Our team has also introduced it (and is training) her OT, who can’t stop talking about how dramatically improved her treatment is with all of her clients. I also recommend checking out wwww.floortime.org–where you may access an online discussion group with parents and professionals.

October 5th, 2006 at 7:24 pm

Denise LaMontagne says:

Sorry, the website I noted didn’t post. Here it is…

www.icdl.com

October 5th, 2006 at 7:25 pm

Rachel says:

My son has Down Syndrome and I have found exceptional support and information from this website; www.downsyn.com

October 9th, 2006 at 3:40 am

Susan Evensen says:

My youngest son is a special child. The web site I find helpful is TACA (Talk about curing autism). It is a support group that helps children. There are also sports leagues that will include your child if he/she can’t make it in the regular league. In South Orange county- Spiritleague.org and the baseball league is called the challenger league. The soccer league is under AYSO but called the VIP league. This has helped my child with his self esteem.

October 12th, 2006 at 10:30 am

Marla Simon says:

I am an educational consultant with fifteen years of directing parents to resources. Check out my website resources and you might find some assistance. It is important to remember that just because something is on the interent it does not make it valid. Many excellent resources include: wrightslaw.com for legal advice, CHADD.org for ADD information, LDONLINE.com for LD information, autism-society.org/site/PageServer for the autism society. Never stop being your child’s advocate. Good luck.

October 15th, 2006 at 10:35 am

Janelle says:

Our 15 year-old son was diagnosed with PDD-NOS (an autism spectrum disorder), nearly ten years ago. He had great success with the therapies he received while in elementary school. Another big influence has been to raise him with the same expectations that we have for his brothers. Because each personality has his own challenges, they are approached uniquely, but they are parented equally. This satisfies everyone because he doesn’t get left behind, and the siblings don’t feel like he gets special treatment.

A most valuable resource that has made a tremendous impact on his life is HRI/Pfeiffer Treatment Center, a world class, non-profit, research facility in suburban Chicago. Our son has been a patient of theirs for four years now, and it has changed his life because of their care. Using tests of hair, blood, urine, and stool samples, his biochemistry is corrected through nutritional supplementation, diet, and health habits. Our well water is filtered, and we use organic laundry, cleaning, and hygiene supplies, including organic toothpaste.

Our son is currently a freshman in high school, and is mainstreamed in all of his classes, with a part-time assistant in three of them. He currently holds a B average, and was on the honor roll all through middle school. I know that the ground work established in grade school, along with the nutritional and environmental interventions implemented through Pfeiffer, are what made the difference in his success.

I highly recommend HRI/PTC to anyone with ADD, ADHD, PDD, ODD, SAD, depression of any type, schizophrenia, menopause, or any other type of biochemically based disorder. Check this place out! They have patients from around the world, and do clinics in several cities across the country, so you may not have to go to Chicago. They also have a few satellite clinics. Their research takes them around the world so they are on the cutting edge of what works, and put that to work for their patients.

Check out their website:

http://www.hriptc.org/

It is full of information about their clinic, their pharmacy where they do compounding for custom-made nutritional supplements that are fairly priced, as well as, valuable links to other wonderful resources to help your loved one with special needs.

In the end, I have to give credit to God Almighty for how well our son has done, despite how difficult a road this has been. What was meant for harm, He has taken and made right because we love Him. Looking back, I can see how all of the elements to help our son have fallen into place through the work of His hands over the years. For that, I will always be grateful and give Him all the credit.

I hope this humble bit of info helps someone. I had to pass this on after all the good that has come of it for us, and especially, our son. Godspeed, and best wishes!

October 25th, 2006 at 12:42 pm

Christine Field says:

Hi,
My latest book, Homeschooling the Challenging Child, is about homeschooling special needs children. I also write a Resource Room column for the Old Schoolhouse Magazine. Please visit my site for info and encouragement.
Blessings,
Christine Field

October 31st, 2006 at 8:40 pm

Jennifer says:

The ECAC (Exceptional Children’s Assistance Center) is a great resource in North Carolina that helps parnets advocate for their special needs chldren in schools and provides information on various disabilities.
http://www.ecac-parentcenter.org/

November 1st, 2006 at 6:53 am

Linda says:

Faslink has been a life saver for me with support and education in dealing with my kids who have fetal alcohol spectrum disorders. They also have kept archives so almost any situation involving fasd can be found.

November 4th, 2006 at 8:25 pm

Linda says:

I noticed the faslink website didn’t show up in my previous posting. It is www.faslink.org

November 4th, 2006 at 8:32 pm

Emmy Summers says:

TEACCH was the single most helpful resource for helping my son who was diagnosed with Asperger’s Syndrome at age 7. He is now 20 and doing well.
TEACCH stands for Treatment and Education of Autistic and other Communication-handicapped CHildren (and adults). They are amazing.

November 5th, 2006 at 9:04 am

Sharon says:

This website is so informative about ALL exceptional children. It is the “Council for Exceptional Children.” They also have a quarterly magazine “Teaching Exceptional Children.”

November 8th, 2006 at 1:58 pm

Pam says:

My son has been enrolled in a program with Crossroads Institute since March of this year. (www.crossroadsinstitute.org) He was diagnosed through the Amen Clinic as having ADHD over 2 years ago. However, the Amen Clinic treated only with behavior-altering medication and I saw very little improvement. The Crossroads Institute has a “whole body” approach which includes brain mapping, metabolic testing, allergy testing, etc. The program is very time consuming and can be costly, but I’ve seen about a 75% improvement in my son, who is 10 years old. It has been worth every penny. Crossroads claims that the fix is a permanent one unless there is subsequent head trauma, alcohol or drug abuse, or the patient begins eating the foods that they’re allergic to.

November 9th, 2006 at 5:44 pm

Karen F. Greenberg says:

Prosperity Life Planning teaches families of Special Needs Kids how to plan for the child’s (or adult child’s) future while protecting eligibility for public benefits. Founded in 1994 by Karen Greenberg, mother of a child with Autism and Certified Financial Planner with a Masters Degree in Taxation, Karen has helped thousands of families learn what to do and not to do, and works to design and implement financial, legal and social solutions for the benefit of the whole family, as well as the special needs situation. PLP is based in South Florida, and periodically visits the Long Island, NY area through the year. Visit www.prosperitylifeplanning for more information.

November 9th, 2006 at 7:07 pm

Karen F. Greenberg says:

November 9th, 2006 at 7:14 pm

Laurie Trapp says:

For a child with sensory integration dysfunction, I found the book “The out of Sync Child” and the followup book “The out of sync child has fun” very helpful for both me and my husband. It is written with assistance of an occupational therapist. Our son is doing much better with OT services and with us being able to understand that his needs are just a bit different. We have adjusted the way we do things and we can definitely see the benefits. He has made alot of progress. I appreciate the other websites and I will check them out for more information.

November 14th, 2006 at 11:57 am

Wendy says:

The State University of New York at Buffalo has an exceptional treatment program for kids with ADD/ADHD. My son attended their summer treatment program. The parent training and a lot of other information is available on their website…. http://wings.buffalo.edu/adhd/

November 14th, 2006 at 1:56 pm

Leslie says:

Sometimes Asperger’s children - particularly adolescents - need supports that parents cannot provide. Starr Commonwealth’s Montcalm School has developed a residential program that is particularly effective with Asperger’s children who are experiencing oppositional, defiant and other disruptive behaviors. Starr’s website has more information. www.starr.org or you can visit the Montcalm School website.

November 21st, 2006 at 11:39 am

Rhonda says:

This is an online autism information and support site for parents, family, friends, professionals and even those on the autistic spectrum themselves. We have members from around the globe. Our focus is on autism and autism spectrum disorders (aspergers syndrome, PDD-NOS, ADHD)

November 24th, 2006 at 10:42 am

Rhonda says:

not sure why my site link did not show up…but here is the URL

http://groups.msn.com/AutismSpectrumDisorderSupport

November 24th, 2006 at 10:43 am

Shannon Carter says:

My son was 2 years old when I finally figured out that he has intolerances to gluten and dairy that were causing him developmental delays in addition to the physical symptoms (eczema, digestive problems, cranky all the time, etc.). A website I have found particularly helpful is http://www.betterhealthusa.com/. There, you can complete an online questionnaire that will help you figure out what kinds of tests to ask your doctor to run to determine whether you have food allergies, Candida overgrowth, etc. You can also find recipes there, and the site allows you to specify foods to avoid, and it will only come up with recipes that do not contain those foods.

You might also check out Dr. Doris Rapp’s website, http://www.drrapp.com/. Her book, “Is This Your Child?”, has been invaluable to me in learning about food allergies.

BTW, I have read many times that a GFCF diet helps those with Autism/PDD/ADD/ADHD/SID.

Hope this helps!

Shan

November 25th, 2006 at 10:59 pm

Mike Abramovitz says:

http://www.nldontheweb.org/ is a great site for nonverbal learning disorder that will also take you to many other sites. This is where we started our journey. Also a great “plain english” explanation of NLD that we’ve given to family, friends and eductators is in the article at this link http://urj.org/Articles/index.cfm?id=6374&pge_prg_id=38945&pge_id=3905. While this is from a faith based website, it is a good laymans explanation

November 28th, 2006 at 6:24 pm

Kim says:

Selective mutism is an social communication axiety disorder in which a person is unable to speak in social situations where it is expected, such as school, but speak normally in situations they are comfortable in such as at home.

http://selectivemutism.org/
http://health.groups.yahoo.com/group/Selectivemutismsupportgroup/

December 8th, 2006 at 4:57 pm

John says:

This is simple and easy information.
Great site to begin searches for information.

December 13th, 2006 at 4:10 pm

John says:

www.nimh.nih.gov

December 13th, 2006 at 4:11 pm

Shawn says:

Hi. I am a member of Feingold, is a special diet that eliminates artificials, which has helped many special needs children. You can go to their website for great info at www.feingold.org

December 18th, 2006 at 6:32 pm

Linda Huff says:

It is interesting to note that “Bootcamp for Kids” is sold out. Are there Canadian bootcamps for kids?

December 19th, 2006 at 12:19 pm

Diane says:

This is a wonderful site combining practical guidance, scientific news and more. You can sign up for monthly email updates. LD OnLine.org is the world’s leading web site on learning disabilities and ADHD, serving more than 250,000 parents, teachers, and other professionals each month.

December 22nd, 2006 at 7:23 am

Diane says:

http://www.ldonline.org

December 22nd, 2006 at 7:25 am

Sybil Reisch says:

As a mother of a Down Syndrome child, and a special education teacher, I have gathered the years of notes from my journaling to tell Jeff’s story. “Journey With Jeff; Inspirations for Caregivers of People with Special Needs,” is available in a package of 5 CDs. Four exerpts can be found on this website. I also hope soon to have the book published.

December 26th, 2006 at 9:42 am

Sybil Reisch says:

http://www.luther95.com/UNYSWE-ANY/ Click on Resources and scroll down to “Journey With Jeff”

December 26th, 2006 at 9:46 am

Debbie Mumm says:

I am a mother with 5 children, 2 of which were adopted from Russia when they were 5 & 10. I created this website so parents could get support from other adoptive parents & professionals with knowledge of adoptive children and adoption issues. It is loaded with helpful links and offers a FREE newsletter plus teleseminars.
www.everythingforadoption.com

December 30th, 2006 at 3:32 pm

Tammy says:

Non-profit Lutheran based agency that provides services to children and adults with developmental disabilities. They are located in many cities across the United States and can be a good resource if you need to actually speak to someone in your area.

January 4th, 2007 at 12:20 pm

Tammy says:

I’m sorry, the agency is Mosaic and their website is: www.mosaicinfo.org

January 4th, 2007 at 12:21 pm

Susan Bradley says:

The link: http://www.hsmjs.org/products.htm is my school cooperations’s website that is full of links, videos, pictures, and great resources for parents or individuals interested in the topic of Autism. It covers a vast amount of information. I hope it proves to be useful.

January 7th, 2007 at 10:23 pm

Robin says:

These website and magazine are a wealth of knowledge for anybody involved in the wacky world of ADD.

January 10th, 2007 at 5:31 pm

Robin says:

I must be having an ADD moment. The website is additude.com Sorry about that!

January 10th, 2007 at 5:32 pm

Christina says:

Thanks so much to all who voiced helpful opinions, I am looking forward to trying some of these new-to-me websites soon…
There are many books on the subject(s) of Special Needs children, however, these were of particular help to our family and have their associated websites…
1. It’s So Much Work to Be Your Friend, by Richard Lavoie
2. The Explosive Child, by Dr.Ross W. Greene
3. Bipolar-The Elements of Bipolar Disorder by Dr. Jay Carter

“We must be willing to get rid of the life we’ve planned, so as to have the life that is waiting for us.” Joseph Campbell

January 14th, 2007 at 8:19 pm

Kathy says:

It looks like you have covered about every website that I have been too,plus I have found several more to check out. However, I have a book that I am reading is “Breakthrough Parenting for Children with Special Needs Raising The Bar of Expectations” By Judy Winters. I have just started it, but this seems to be a great book.

The other thing that I can recommend is getting your kids involved with special olympics. I did this for my daughter a year ago. I am just thrilled with the changes in her. It has been such a positive setting for her. So if anyone has kids with cognitive impairments I would highly recommend this too. I also recommend parents getting involved, either chaperoning or coaching. I have been coaching since our 2nd sport she joined, it has been just as important to my growth dealing with her diagnososes as it has been for her socially.

January 14th, 2007 at 9:41 pm

Denise Chasin says:

Personal Ponies Ltd provides a small UK shetland pony for children that are differently able. Ponies are available to visit throughout the country or are available to live with you and your child.

January 17th, 2007 at 5:40 am

Marija says:

This website is for Relationship Development Intervention. It has a lot of information for parents of children with autism or asperger’s. It is a specific type of intervention, but there are also a lot of resources and information about what autism is.

January 17th, 2007 at 11:53 am

Karen says:

This site is for families raising children with FASD. I have found the site very informative. They also have a support group which I belong to and I love. It is so wonderful to be able to talk with people who are in the same situation as you and can understand.

January 17th, 2007 at 6:15 pm

Emma Holliday says:

I’m an educator and have done some testing on Irlen Syndrome and Scotopic Sensitivity Syndrome. If your child plays up in class or refuses to read - even on on the computer - you might find my results interesting. http://eaholliday.squarespace.com/

January 17th, 2007 at 7:55 pm

Frank says:

http://www.tell-us-your-story.com/
I dare you to read the stuff on this site and not have your eyes opened.

National Dissemination
Center for Children
with Disabilities:
http://www.nichcy.org/index.html
(Exellent source for basic information!)
On pdd-nos:
http://www.nichcy.org/pubs/factshe/fs20txt.htm
Aticle on my particular disability.

January 20th, 2007 at 1:10 pm

Rhonda says:

I have an online autism information and support group - we have members from around the world, and share and discuss autism issues on a daily basis.
http://groups.msn.com/AutismSpectrumDisorderSupport

I have a daughter who was initially dx with severe sensory integration dysfunction at 2 and then with autism at 3. She is now almost 7 and in a mainstream 1st grade class with an aide and doing very well!

January 22nd, 2007 at 6:53 am

Donna says:

I need help…

Does anyone have experience with a child at 4 1/2 that seems to have a flip flop personality? One second they’re sweet as pie the next they shake with anger at the least little thing going into a rage, then somehow suddenly back to being that sweet little child again. Potty training is ongoing, though we seem to have breakthroughs that don’t last. The doctor say she is in good health and to work with her on potty training. I haven’t made my concerns known thinking I can handle this. Now I’m not so sure. She can’t join any groups like AWANA’s or art class unless I’m right there but then that seems to discourage independence. I homeschool her and her 9 year old sister. Am I just over-reacting to something she’ll grow out of or should I take her to a child psychologist?

January 22nd, 2007 at 9:36 am

Monika says:

Hi Donna;

I don’t know for SURE of course, but the two things that come to mind instantly are Bi Polar Disorder or Sensory Processing Disorder.

Look them both up on the web to get more info and see what you think.

I have lots of experience with Sensory stuff because my son was diagnosed with it at age 3. We had nightmares with potty training too. It took until AFTER age 4!!

I have a blog that


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